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ALISO VIEJO, Calif.--(BUSINESS WIRE)--Sep 14, 2022--
Global Genes, a leading rare disease patient advocacy organization, today announced its annual RARE Champions of Hope award winners, recognizing leaders and organizations for their inspiring work in driving innovation, advocacy and change in rare disease as part of the 2022 RARE Disease Patient Advocacy Summit in San Diego.
This year, the celebration recognizes those who made a significant impact across seven categories in the areas of advocacy, industry, medical care, and science, as well as up-and-coming rare disease leaders.
“In a community that is faced with ever-expanding needs and some extraordinary challenges, this year’s recipients were undaunted and forged ahead to accomplish extraordinary things on behalf of people living with rare diseases,” said Craig Martin, CEO of Global Genes. “We are driven by their examples and inspired to meet the standards they’ve set for us through their determination, ingenuity, resourcefulness and tireless focus on making a meaningful impact.”
The 2022 RARE Champions of Hope are:
Global Genes is grateful for the support of the event sponsors: Horizon, Illumina, Neurogene and Travere.
For more information on this program and the awardees, visit www.globalgenes.org.
About Global Genes
Global Genes is a 501(c)(3) non-profit organization dedicated to creating a globally connected community committed to eliminating the challenges of rare disease. Together with our partners, we help people find and build communities, gain access to information and resources, and provide hope and support for the more than 400 million people affected by rare disease around the globe. If you or someone you love has a rare disease or are searching for a diagnosis, contact Global Genes at 949-248-RARE or visit our Resource Hub.
View source version on businesswire.com:https://www.businesswire.com/news/home/20220914005002/en/
CONTACT: Global Genes:
Laura Vinci
Finn Partners
402-499-8203
laura.vinci@finnpartners.com
KEYWORD: CALIFORNIA UNITED STATES NORTH AMERICA
INDUSTRY KEYWORD: RESEARCH GENETICS PHILANTHROPY OTHER HEALTH BIOTECHNOLOGY GENERAL HEALTH PHARMACEUTICAL HEALTH OTHER PHILANTHROPY SCIENCE
SOURCE: Global Genes
Copyright Business Wire 2022.
PUB: 09/14/2022 08:00 AM/DISC: 09/14/2022 08:03 AM
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